For Participants

For Participants

Thank you for taking part or for considering taking part in candid. On this page you will find details of how we are taking care of the information you provided, where you can find information about the questions in the survey and all the publications arising from CANDID.

What do we do with the information you give us?

Information collected or held by the University must comply with the data protection principles which are set out in the Data Protection Act 1998. In order to ensure that this happens, the University has developed a Data Protection Policy. This policy can be found here. Additional details of what happens to the information you give us are given below.

What happens to the information you give us?

CANDID Survey: If you have completed the survey only you will have done so anonymously.  That means we do not hold any information that can be used to identify you personally.

CANDID Interviews: If you have volunteered to take part in an interview you will have provided us with your name and contact details. Here are some key ways in which we are protecting your data:

  • Data are stored on a secure server in a secure study project file.
  • The only people who can access the data are named members of the research team.
  • As soon as possible all the information that could be used to identify an individual participant is removed from the stored data.
  • Your name is not stored in the same file as your interview. Each interview is given a unique code number and this number is used on the stored interview recording.
  • The interview recording is transferred to an approved company for transcription using the University‚Äôs secure file transfer facility. The transcript and original recording is transferred back to the University using the same secure file transfer facility.

Making the most of the information you give us

We plan to disseminate widely the findings to the Scottish Intensive Care Society, Intensive Care Society, NHS Boards and will publish in critical care journals and present results at relevant national and international critical care conferences. We will publish the analyses of the survey and interview data in a timely manner. We will publish the work in preprint form in publicly accessible archives designed for this purpose, e.g. PsyArXiv or MedArXiv. We will hold a series of stakeholder events to communicate the results with nurses who took part in the study and with NHS Boards.

We will store securely the survey dataset and interview transcripts. Once the study is complete and we have completed all our publications, other researchers will be able to access the data. This is part of the open science approach to research that aims to make best use of all the research data collected nationally and internationally.

Survey and Interviews

Details of the measures used in the survey and the interview schedule can be found on the Documents Page.

Publications

Publications from CANDID will be located on the Documents Page.