It is estimated that around four percent of children in the UK have a neurodisability, many of whom have self-care issues. Whilst a number of these children can achieve self-care levels close to their typically developing peers, this often requires significant support from parents and NHS therapists. There is currently little evidence about what support works best, no national guidelines, and no evidence about cost-effectiveness to inform decision making. As a result, support that children and families receive is variable. 

The CHESS study will assess how parents and healthcare workers can support young children with neurodisabilities to develop independence in everyday self-care tasks. Families will either receive Children’s Early Self-care Support therapy or standard care to improve independence and self-care skills over 12 months. The trial will gather much needed evidence on effective interventions to support children, parents, and professionals.

The CHESS trial is funded by the NIHR HTA Programme. The study will involve 960 children and their families across 40 NHS centres around the UK. 

The CHESS trial is led by Dr Niina Kolehmainen, from Newcastle University.



Ongoing - In set up