Here are some key resources that give further information about the role of Public and Patient Involvement and Engagement, the research process and some of the diseases we study within the group.

Please note these resources are held externally to our own website and will open in a new window. If you find any of these links broken please let us know by emailing

NIHR Involve - Essential information for members of the public getting started in involvement in research.

As the title suggests, this guide provides key information for those looking to get involved in public involvement in research, and answers some key questions those starting out in PPIE might have. The guide is from 2017, however the information contained within is still very relevant today.

You can view or download the guide here:

NIHR Involve - Essential information for members of the public getting started in involvement in research

NIHR Involve - Jargon Buster

Sometimes the vast array of terms, acronyms and abbreviations can make information that is available about research seem more complicated than it really is. The NIHR’s comprehensive A-Z list covers most anything that might be covered in the research context:

NIHR Involve – Jargon Buster

NIHR Learning for Involvement

For a whole catalogue of learning opportunities and articles, the NIHR provides this handy, searchable resource. You can search the database using the link below, or dive right into the interactive PPIE course here.

NIHR Learning for Involvement

NIHR Interactive Course for Patient / Public Reviewers of Health and Social Care Research

UK Standards for Public Involvement

Developed with a number of research funding bodies, including the NIHR, Chief Scientise Office (Scotland) and Health and Care Research Wales, this document sets out the agreed standards for public involvement in research in the UK.

UK Standards for Public Involvement

NHS Scotland – Supporting Research

NHS Scotland provides an overview of a number of areas of research support, including guides on Ethics, Research Governance and Good Clinical Practice (GCP):

NHS Scotland – Supporting Research

Glossary of Conditions

We have developed a glossary which details some of the main conditions our research covers.

Epidemiology Group - Glossary of Conditions

Epi PPI Training Programme

We are currently in the process of delivering a series of bespoke training sessions for our Core PPI partners covering key aspects of patient involvement in our research including:

  • An overview of common musculoskeletal conditions
  • An introduction to epidemiology
  • A guide to research methods, both quantitative and qualitative
  • The opportunities and challenges of being a PPI partner
  • Confidence and presentation skills to aid participating in research

Our course is currently running on a monthly basis, and we intend to make resources from these sessions available on the programme page. Click the link below for further information.

Epidemiology Group - PPI Training Programme