Getting linked: for better health
is a research network who's purpose is to optimise the secondary use of health data in research and link datasets within and out with the NHS to improve healthcare.
Health and Data Linkage in North East Scotland (HEADLINES) is a research network that brings together researchers from the University of Aberdeen, NHS Grampian and Robert Gordon's University.
Our aim is to optimise the secondary use of electronic health data for research by bringing together experience, sharing resources, and by supporting collaborative working, education and training, and best practice in governance.
As well as regular communication via the email distribution list, we also host regular events for our members to meet and share information and promote collaboration in health informatics research.
HEADLINES was formed in November 2011 after the Principal, Professor Diamond, identified "Pathways to a Healthy Life" as a major strategic research theme for the University of Aberdeen.
Common to the areas of research in which the IAHS was already contributing to this theme, we identified health informatics research, or the use of national and local data sources and their linkage, as a powerful means of understanding the factors which influence health and disease over the course of life.
- Who are We?
The diagram below aims to summarise who we are.
HEADLINES is open to anyone involved with or interested in the use of national and local data sources and their linkage for research. As well as frequent communication via the email distribution list, we also host regular meetings and workshops for our members to share information and promote collaboration in health informatics research.
Agenda's and presentations from the workshops below are available to members via Sharepoint.
To become a member email firstname.lastname@example.org.
- Mr G Patrick Ashcroft, Orthopaedics
- Dr Lorna Aucott, Medical Statistics Team
- Dr Rebecca Barr, Musculoskeletal Research Programme
- Dr Neil Basu, Epidemiology group
- Ms Jacqueline Bell, IMMPACT
- Dr Mary Bellizzi, NHS Grampian
- Prof Siladitya Bhattacharya, Academic Obstetrics and Gynaecology
- Dr Sohinee Bhattacharya, Academic Obstetrics and Gynaecology
- Prof Corri Black, Chronic Disease Research/Grampian Data Safe Haven
- Dr Mairead Black, Academic Obstetrics and Gynaecology
- Prof Christine Bond, Academic Primary Care
- Dr Chris Burton, Academic Primary Care
- Dr Jessica Butler, Health Informatics Research
- Ms Heather Clark, Postgraduate Education Group
- Dr Carl Counsell, Chronic Disease Research Group
- Dr Leone Craig, Rowett Institute of Nutrition and Health
- Dr Mike Crilly, Chronic Disease Research Group
- Prof Marijn de Bruin, Health Psychology
- Prof Lesley Diack, Robert Gordon's University
- Prof Graham Devereux, Respiratory Group
- Mr Andrew Elders, Health Services Research Unit (HSRU)
- Dr Susan Fairley, Centre for Genome-Enabled Biology and Medicine
- Dr Sharon Gordon, Grampian Data Safe Haven
- Dr Jenny Gregory, Department of Orthopaedic Surgery
- Ms Stephanie Hall, Chronic Disease Research/Grampian Data Safe Haven
- Prof Phil Hannaford, Research & Knowledge Exchange
- Prof Peter Helms, Child Health
- Dr Lynne Hocking, Centre for Genome-Enabled Biology and Medicine
- Graham Horgan, Biomathematics & Statistics Scotland, Rowett Institute of Nutrition and Health
- Dr Lisa Iversen, Academic Primary Care
- Marjorie Johnston, Chronic Disease Research Group
- Dr Gareth Jones, Epidemiology Group
- Prof Amanda Lee, Medical Statistics Team
- Prof Anne Ludbrook, Health Economics Research Unit (HERU)
- Dr David Lusseau, School of Biological Sciences
- Prof Gary Macfarlane, Epidemiology Group
- Dr Tatiana Macfarlane, Dental School Research
- Dr Mary Macleod, Division of Applied Medicine
- Dr Harry Marks, Chronic Disease Research Group
- Prof Iain McEwan, Cell, Developmental and Cancer Biology
- Dr James McLay, Child Health
- Dr David McLernon, Medical Statistics Team
- Prof Paul McNamee, Health Economics Research Unit (HERU)
- Prof Geraldine McNeill, Rowett Institute of Nutrition and Health
- Dr Peter Murchie, Academic Primary Care
- Dr Fiona Murray, School of Medical Sciences
- Prof Alison Murray, Aberdeen Biomedical Imaging Centre
- Prof Phyo Myint, Epidemiology group
- Ms Aileen Neilson, Health Economics Research Unit (HERU)
- Dr Patricia Norwood, Health Economics Research Unit (HERU)
- Dr Sam Philip, NHS Grampian
- Dr Gordon Prescott, Medical Statistics Team
- Ms Shifa Sarica, Epidemiology group
- Dr Simon Sawhney, Chronic Disease Research
- Miss Sarah Scott, Academic Urology Unit
- Dr Roger Staff, Institute of Medical Sciences
- Dr Markus Steiner, Respiratory Group
- Prof Derek Stewart, Robert Gordon University
- Dr Lucy Thompson, Centre for Rural Health, Inverness
- Dr Janine Thoulass, Chronic Disease Research Group
- Dr Melanie Turner, Division of Applied Medicine
- Dr Steve Turner, Respiratory Group
- Dr Jaqueline Wallace, Rowett Institute of Nutrition and Health
- Dr Margaret Watson, Academic Primary Care
- Ms Katie Wilde, Data Management Team/Grampian Data Safe Haven
- Ms Jane Williams, Robert Gordon's University
- Prof Phil Wilson, Centre for Rural Health, Inverness
- Further Useful Information
- Health, Social Care and Social Science Pulic Advice and Support Drop-in Service (FARR Institute)
- The Challenge of Saving Lives With "Big Data" - BBC News Article 7/2/16
Public Attitudes to the Use of Personal Data in Research: A Wellcome Trust Report
The most in-depth research ever into what the public think about patient records being used by commercial organisations has revealed that the majority are in favour as long as there is a clear public benefit and appropriate safeguards are in place.
The Wellcome Trust commissioned Ipsos MORI to carry out a major piece of social science research, including workshops with over 200 people and a survey of 2000 people. The research, published today, aims to inform a review that Health Secretary Jeremy Hunt has asked Dame Fiona Caldicott, the National Data Guardian, to conduct.
The findings of the Caldicott Review, which are expected imminently, will provide advice on the wording for a new model of consents and opt-outs, to enable patients to make an informed decision about how identifiable information in their health records is used.
Penetration Security Testing
Grampian Data Safe Haven (DaSH), our secure research facility for handling health, administrative and research data successfully underwent specialist internal and external Penetration Security Testing in May. The testers reported that, “The security posture from inside the Safehaven network is very strong”. One “medium risk” relating to software development facilities in the safe haven has been removed. Mr Brian Henderson, Director of IT Services, said, 'I am delighted with the testing report. This reflects a lot of hard work by the IT Services team.' DaSH currently supports 30+ research teams analysing their data in the secure 'virtual' research facility.