Experiences of patient and public involvement

Experiences of patient and public involvement

An ongoing cluster of work around the experiences of people who get involved in research, and the researchers who seek to involve them, and how involvement changes research. 

http://www.healthtalk.org/peoples-experiences/medical-research/patient-and-public-involvement-research/topics

https://healthtalk.org/patient-public-involvement-researchers/overview

Contacts

Status

Ongoing - Analysis and publication ongoing

Publications

Locock, L, O'Donnell, D, Donnelly, SJ, Ellis, L, Kroll, T, Shé, ÉN & Ryan, S 2022, Language has been granted too much power’: Challenging the power of words with time and flexibility in the precommencement stage of research involving those with cognitive impairment, Health Expectations, vol. 25, no. 6, pp. 2609-2613. https://doi.org/10.1111/hex.13576

Taylor, MA, Adam, P, Locock, L & Kamenetzky, A 2021, 'Who defines the impact of research? A patient-centred opinion and call for action.', Journal of Research Management and Administration, vol. 1, no. 1, pp. 6-17. https://doi.org/10.18552/jorma.v1i1.655

Crocker JC, Farrar N, Cook JA, Treweek S, Woolfall K, Chant A, Bostock J, Locock L, Rees S, Olszowski S, Bulbulia R. Recruitment and retention of participants in UK surgical trials: survey of key issues reported by trial staff. BJS Open 2020 vol 4, no. 6, pp. 1238–1245. https://doi.org/10.1002/bjs5.50345

Crocker, JC, Pratt-Boyden, K, Hislop, J, Rees, S, Locock, L, Olszowski, S, Chant, A, Treweek, S, Cook, JA, Woolfall, K, Farrar, N, Bostock, J & Bulbulia, R 2019, 'Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views and experiences', Trials, vol. 20, 119. https://doi.org/10.1186/s13063-019-3183-0

Locock, L, Kirkpatrick, S, Brading, L, Sturmey, G, Cornwell, J, Churchill, N & Robert, G 2019, 'Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement', Research Involvement and Engagement, vol. 5, 1. https://doi.org/10.1186/s40900-018-0133-z

Locock, L & Boaz, A 2019, 'Drawing straight lines along blurred boundaries: Qualitative research, patient and public involvement in medical research, coproduction and co-design', Evidence & Policy, vol. 15, no. 3, pp. 409-421. https://doi.org/10.1332/174426419X15552999451313

Boylan, A-M, Locock, L, Thomson, R & Staniszewska, S 2019, '“About sixty per cent I want to do it”: Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI)—A qualitative interview study', Health Expectations, vol. 22, no. 4, pp. 721-730. https://doi.org/10.1111/hex.12883

Boylan, A-M, Locock, L & Machin, L 2019, 'From waste product to blood, brains and narratives: developing a pluralist sociology of contributions to health research', Sociology of Health & Illness, vol. 41, no. 3, pp. 585-600. https://doi.org/10.1111/1467-9566.12715

Knowles, S, Hays, R, Senra, H, Bower, P, Locock, L, Protheroe, J, Sanders, C & Daker-White, G 2018, 'Empowering people to help speak up about safety in primary care: Using codesign to involve patients and professionals in developing new interventions for patients with multimorbidity', Health Expectations, vol. 21, no. 2, pp. 539-548. https://doi.org/10.1111/hex.12648

Hutchison, K., Rogers, W. & Entwistle, V. (2017). 'Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to Research'. Health Care Analysis, vol 25, no. 4, pp. 386-403.

Locock, L, Boylan, A-M, Snow, R & Staniszewska, S 2017, 'The power of symbolic capital in patient and public involvement in health research', Health Expectations, vol. 20, no. 5, pp. 836-844. https://doi.org/10.1111/hex.12519

Crocker, JC, Boylan, A-M, Bostock, J & Locock, L 2017, 'Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study', Health Expectations, vol. 20, no. 3, pp. 519-528. https://doi.org/10.1111/hex.12479

Petit-Zeman, S. & Locock, L. (2013). 'Bring on the evidence'. Nature, vol 501, pp. 160-161.