This is a qualitative video- and audio- interview study with ~45 people. We undertook in depth interviews with people who have experience of the longer-term effects of COVID-19, exploring the effect Long COVID-19 has had and continues to have on their lives, including their: symptoms; access to and experience of services; information, support and care needs. The purpose of undertaking these interviews is to improve understanding of the varied experience of COVID-19, inform further research and service improvement and create a highly accessible resource for patients, families and health care professionals, which will be of immediate use for support and training. This will be available on the Healthtalk platform (https://www.healthtalk.org/), a multiple award winning source of patient experience.
COv-VOICES is led by Prof Kate Hunt at the University of Stirling and is funded by the Chief Scientist Office.
The members of the team (which includes Professor Louise Locock at the Health Services Research Unit in Aberdeen and Professor Sue Ziebland at the University of Oxford) have extensive experience of using the rigorous social scientific methods underlying Healthtalk in relation to many other health conditions and a track record in co-working and publishing together. They are familiar with Healthtalk’s particular potential for making the experiences of those with less researched and or rarer health conditions accessible to a wide audience.
For more information please click here.
Contacts
- Louise Locock; louise.locock@abdn.ac.uk
Status
CompletedPublications
Hunt, K., MacLean, A., Brown, A., Evered, J. A., Dowrick, A., Fokkens, A., Grob, R., Law, S., Locock, L., Marcinow, M., Smith, L., Urbanowicz, A., Verheij, N., Wild, C. Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy SSM - Qualitative Research in Health
Hunt, K, MacLean, A, Locock, L, O'Dwyer, C, Nettleton, S, Ziebland, S & Wild, C 2024, 'Young adults’ experiences of biographical retrogression whilst living with Long Covid', Sociology of Health & Illness.
MacLean, A, Hunt, K, Brown, A, Evered, JA, Dowrick, A, Fokkens, A, Grob, R, Law, S, Locock, L, Marcinow, M, Smith, L, Urbanowicz, A, Verheij, N & Wild, C 2023, 'Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy', SSM - Qualitative Research in Health, vol. 3, 100207. https://doi.org/10.1016/j.ssmqr.2022.100207