Project title: Vasculitis Outcomes In relation to Care ExperienceS
Duration: 01 September 2019 - 31 July 2023
Funder: Versus Arthritis
Chief investigator: Dr Rosemary Hollick
Other UoA investigators: Professor Corri Black (Aberdeen Centre for Health Data Science), Professor Louise Locock (Health Services Research Unit)
Other co-investigators: Dr Neil Basu (University of Glasgow), Professor Mark Little (Trinity College, Dublin), University of Oxford Healthtalk team
Patients with rare rheumatic diseases report struggling with healthcare systems not designed to manage complex diseases, as well as dealing with delays in diagnosis, inconsistent access to expertise, and uncoordinated care.
This project aims to understand the key elements of care delivery which are related to health outcomes for patients with vasculitis. The study will work with healthcare professionals and patients to gather information and study their healthcare records in order to design better services, and ensure patients can access effective, and coordinated, care and support.