What are the aims of this research?
This research aims to improve healthcare services for patients with fibromyalgia. The hope is to provide timely diagnosis which can currently take many years. We also hope to ensure everyone has access to effective treatments, and that this will lead to better outcomes for patients.
Why is this research important?
Fibromyalgia is a common condition with symptoms of pain, fatigue and sleep disturbance. There is not much evidence on the best way to organise health services for fibromyalgia. Patients are dissatisfied with current services and believe that no-one takes responsibility.
We will gather information from patients about their current healthcare. We will work with health professionals to understand how services are organised. We will then identify what better care for patients with fibromyalgia looks like. We will also estimate the benefits and costs of existing and alternative models of care.
How will the findings benefit patients?
By the end of the study we will have developed a new model of care for people with fibromyalgia, prioritised according to what people with fibromyalgia think is important. We will propose and test a new cost-effective care model that ensures better outcomes for patients and develop a plan for how the service can be put in place to ensure higher levels of patient satisfaction across the country.
We will also produce an online resource offering information and support to patients via Healthtalk.