What are the aims of this project?
This project aims to improve healthcare services for patients with fibromyalgia. The hope is to provide timely diagnosis which currently takes many years. We also hope to ensure everyone has access to effective treatments, and this will lead to better outcomes.
Why is this project important?
Fibromyalgia is a common condition with symptoms of pain, fatigue and sleep disturbance. There is not much evidence on the best way to organise health services for fibromyalgia. Patients are dissatisfied with current services and believe no-one takes responsibility.
We will gather information from patients about their current healthcare. We will work with health professionals to understand how services are organised. We will then identify what better care for patients with fibromyalgia looks like. We will also estimate the benefits and costs of existing and alternative care models.
How will the findings benefit patients?
By the end of the study we will have developed a new model of care for people with fibromyalgia. The model will prioritise what people with fibromyalgia think important. It will be cost-effective and ensure better outcomes for patients. We will develop a plan for how the service can be put in place to ensure higher levels of patient satisfaction across the country. We will also produce an online resource offering information and support to patients via Healthtalk.
Who funds the PACFiND study?
The PACFiND study is funded by Versus Arthritis.