Professor in HSRU
Louise is a Fellow of the Academy of Social Sciences. She joined the Health Services Research Unit in 2017, following 14 years in the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford, where she was Director of Applied Research. She is a qualitative social science researcher interested in personal experience of health and illness; patient-centred quality improvement and co-design; and patient and family involvement in research and care. A major recent focus of her work has been how we can better use different types of patient experience data to improve care.
Patient experience; quality improvement using patient experience data; patient and public involvement; experiences of research participation (particularly clinical trials and biobanking); qualitative methods; motor neurone disease and other neurological conditions; long term conditions; pregnancy and parenting experiences
In 2018-19 Louise has been leading a study based in NHS Grampian on how staff feel about and respond to online patient feedback on Care Opinion Scotland. A wider qualitative study on Care Opinion Scotland began in 2019 with a PhD studentship funded by THIS Institute, Cambridge, with PhD student Emma Berry.
Louise also supervises PhD student Jade Howard on the experiences of families with inherited motor neurone disease. The Motor Neurone Disease Association have awarded funding for 2019-21 to make interviews conducted as part of this PhD into a public resource on Healthtalk.
Louise is co-investigator on two Versus Arthritis studies which started in 2019, one on PAtient-centred Care for FIbromyalgia: New pathway Design’ (PACFIND), led by Professor Gary MacFarlane and one on Vasculitis led by Dr Rosemary Hollick.
She is also co-investigator on two Oxford-led studies:
Professor Andrew Farmer's Summit-D programme on support for people with diabetes through mobile messaging
Professor Rafael Perera's Programme Grant on Monitoring Long Term Conditions in Primary Care
and a new study in collaboration with the University of Leicester and THIS Institute, Cambridge on Developing a Visual Identification Method for People with Cognitive Impairment in Hospitals (DA VINCI)
As Principal Investigator Louise recently completed the US-PEx project, a study funded by the National Institute for Health Research Health Service and Delivery Research programme 14/156/06. This project aims to get a better understanding of how NHS frontline staff use different types of patient feedback to improve health services and develop tools to help them make better use of these data.
She was also co-investigator on the INQUIRE project led by Professor John Powell at the University of Oxford on how the NHS can use online patient feedback, and on two further Oxford studies:
Other recently completed projects as conivestigator include
- two MRC-funded methods studies: one on measurement reactivity, led by Professor David French at the University of Manchester, and one on PPI interventions to enhance surgical trial recruitment led by Dr Jo Crocker, University of Oxford.
- experiences of recruiting and participating in for the 100k Genomes Project, in collaboration with Oxford colleagues and Professor Nick Mays at the London School of Hygiene and Tropical Medicine
Louise is lead supervisor for two PhD projects, one on the experiences of families living with inherited forms of motor neurone disease, and one on NHS quality improvement and Care Opinion Scotland starting in 2019.
She teaches on patient and public involvement in research; qualitative methods; and using patient experience data for quality improvement.
- Further Info
Louise is a Fellow of the Academy of Social Sciences.
She served as a Board Member for the National Institute for Health Research Health Service and Delivery Research programme from 2014 to 2019.
She is a study steering group member for the following studies:
The TRECA study: TRials Engagement in Children and Adolescents, University of York
Experiences of taking part in cohort studies, Health Experiences Research Group, University of Oxford
Athena SWAN Self-Assessment Team member and Institutional Athena SWAN Steering Group member