Summary

An ongoing cluster of work around the experiences of people who get involved in research, and the researchers who seek to involve them, and how involvement changes research. Includes the PIRRISTstudy 

http://www.healthtalk.org/peoples-experiences/medical-research/patient-and-public-involvement-research/topics

Contact

Louise Locock: louise.locock@abdn.ac.uk

Status

Analysis and publication ongoing

Publications

Locock, L, Kirkpatrick, S, Brading, L, Sturmey, G, Cornwell, J, Churchill, N,Robert, G. Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement. Research Involvement and Engagement 2019;5(1)

Locock, L,Boaz, A. Drawing straight lines along blurred boundaries. Qualitative research, patient and public involvement in medical research, coproduction and co-design. Evidence and Policy 2019. [ahead of print]

Crocker, JC, Pratt-Boyden, K, Hislop, J, Rees, S, Locock, L, Olszowski, S, Chant, A, Treweek, S, Cook, JA, Woolfall, K, Farrar, N, Bostock, J,Bulbulia, R. Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences. Trials 2019;20(119).

Boylan, A-M, Locock, L, Thompson, R,Staniszewka, S. ‘About sixty percent I want to do it’. Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI): a qualitative interview study. Hea;th Expectations 2019.

Locock, L., Boylan, A-M, Snow, R. & Staniszewska, S. (2017). 'The power of symbolic capital in patient and public involvement in health research'. Health Expectations, vol 20, no. 5, pp. 836-844.

Crocker, JC., Boylan, A-M, Bostock, J. & Locock, L. (2017). 'Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study'. Health Expectations, vol 20, no. 3, pp. 519-528.

Hutchison, K., Rogers, W. & Entwistle, V. (2017). 'Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to Research'. Health Care Analysis, vol 25, no. 4, pp. 386-403.

Petit-Zeman, S. & Locock, L. (2013). 'Bring on the evidence'. Nature, vol 501, pp. 160-161.