PACFIND: Patient-centred Care for Fibromyalgia: New pathway Design

Fibromyalgia is a common condition with symptoms of pain, fatigue and sleep disturbance. There is not much evidence on the best way to organise health services for fibromyalgia. Patients are dissatisfied with current services and believe no-one takes responsibility.

This project will gather information from patients about their current situation and their levels of access to healthcare services. We will work with health professionals to understand how services are organised. We will then identify what better care for patients with fibromyalgia looks like. We will also estimate the benefits and costs of existing and alternative care models. By the end of the study we will have developed a new model of care for people with fibromyalgia. We will develop a plan for how the service can be put in place to ensure higher levels of patient satisfaction across the country. We will also produce an online resource offering information and support to patients via Healthtalk.

HERU researchers involved in this research project: Paul McNamee

External Collaborators: G. MacFarlane, G. Jones, N. Basu, K. Martin, S. MacLennan, L. Lolock, R. Hollick, P. Murchie, (Other Applied Health Sciences, University of Aberdeen); C. Black, (Aberdeen Centre for Health Data Science)